It’s just the beginning….


Two weeks post op and Jake is now on the road to recovery. Surgery went well and after 2 nights in hospital he was allowed home so we drove to London to bring him back. He’s been fitted with a super pubic catheter and also a stent that needed to be removed by a district nurse one week post surgery and this was the first battle we came up against.
I contacted the gp to arrange a district nurse visit and all was booked in and seemed ok until the day arrived. The district nurse called Jake to say she couldn’t remove the stent, it wasn’t something they did on district and therefore she wouldn’t be out to change his dressings, he would need to contact urgent care or the hospital, when Jake reminded her he needed his dressings changed her reply was ‘ we only come out to people that are bed bound’ Jake replied he was whereby she confirmed she wouldn’t be out to treat him and put the phone down. He was distraught and said it was obvious why she didn’t want to come out. I contacted my medical friend who was in disbelief, obviously she said she could do the procedure but as a formal complaint should be submitted he needed to go through the correct channels, she also stated that even if the district nurse thought it was something she couldn’t perform, which of course it wasn’t, she couldn’t refuse to come out and change the dressing.
We went to urgent care and were seen relatively quickly and were treated with a complete professional manner, which always restores my faith in our NHS.
The practice nurse was in disbelief about why Jake was there and why the district hadn’t come out but at least he was seen to and all was healing ok.
Later on that day he started to suffer with lower back pain, which escalated quite rapidly and by early evening even his painkillers were not numbing the pain. The following morning we went back to urgent care where the dr thought he possibly had a urine infection so took a sample and issued some more antibiotics, we thought this would be the end of it but by mid afternoon Jake stated that the pain was so intense he felt like he was dying, it was worse than any surgery he had experienced. So once again after a quick chat with my friend we headed off to A&E.
Whilst registering some confusion occurred as the guy dealing with us, after reading his post surgery letter looked at Jake and said he couldn’t understand what surgery he had had, I pointed out it was all listed, once again he looked confused but tapped all the info into the computer, I guess you have to laugh at moments like this as it proves others seeing Jake see a young man and not Jess, I don’t think at the time Jake saw the funny side to it. We were seen after an hour which in A&E terms was excellent. The dr was confident the pain was not associated with the surgery and most probably a urine infection, he issued some alternative painkillers and stated that 2 days of the antibiotics and Jake should feel a lot better. Jake went to empty his catheter bag before we returned home only to see some crystals in it and his back pain had eased considerably. It seems he has passed a kidney stone which of course would explain the intense pain he was in and the instant relief.
I can tell Jake is feeling a lot better as he’s now bored and came up with an ingenious idea to allow him to actually leave the house without worrying about the catheter bag strapped to his leg becoming loose. He asked me to pick him up a pair of cargo trousers and had cut a hole in the pocket to allow the catheter pipe to pass through and the bag to sit comfortably in the pocket supporting its weight, well you do have a degree in business management I said!
The catheter has to remain in place until the 19 th August whereby we have to make another journey to Harley street in London and hopefully that will be the end of surgery for a while.
Emotionally it’s been draining to watch Jake in so much discomfort but I know the journey is coming to an end and he will have a body that matches his brain and once again I’m eternally grateful for the NHS and the journey we have been on with them.

One thought on “It’s just the beginning….

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s